CORVALLIS, Ore. -- An Oregon State University student with a rare genetic disease is raising money to buy and train a service dog to help her.
Ryleigh Childers, 21, has Ehlers-Danlos Syndrome, a disorder that effects connective tissue. As a result, Ryleigh suffers from joint dislocations every day, which she tries to prevent by wearing braces.
“When I walk or lift something weird, [the joints] will just come out of place and it hurts pretty bad,” she said.
EDS paralyzed Ryleigh's digestive system, so she eats and takes fluid through feeding tubes. On top of all of that, the disease leads to frequent blood pressure surges, which cause Ryleigh to pass out unexpectedly.
“All those things have kind of limited my ability to do things on my own,” said Ryleigh, who was diagnosed EDS last spring, after years of worsening symptoms.
“I'm just constantly amazed at how strong she was even when she didn't know what was going on,” said Liza Rogers, Ryleigh’s best friend and roommate. The pair met as students at North Medford High School, and both attend OSU.
There's no cure for EDS, but doctors told Ryleigh a service dog could help her, both physically and emotionally.
“I'm excited to have independence back and to have a companion all the time,” said Ryleigh.
The dog would learn to alert Ryleigh when she's about to faint, help her move around and fetch things for her when she's having a hard day.
“It would just be amazing to see that change,” said Liza.
Unfortunately, Ryleigh’s insurance won't pay for a service dog, which she said would cost around $4,000. So, Ryleigh started a GoFundMe account. She hopes it also brings awareness to Ehlers-Danlos Syndrome.
“Thank you,” said Ryleigh, to those who’ve donated. “Thank you beyond what words can even describe.”
If you would like to donate, click here.