It takes special people to raise a.pople one with PKU..
After Detection of Phenalketenuria, comes the task of seeing rather one has minimal to severe or Classic PKU or HyperPhenalketenuria the.hardest to control.and the most expensive.
As you can see.in the picture, the cost to treating PKU is not cheap.
But the cost of NOT Treating PKU is far more costly as it can wind up with severe and profound intellectual disabilities as well in some.cases death.
That is right to much protien for these little guys can range from skin conditions to seizures to Ben death. This is the reason for the diet.
Remaining on the diet, Patrick will be able.to grow and thrive .
He can become anyone he choses.to be. With out the diet there is no choice only an poor existence, with out choice with out freedom, a AOL sentence of doing mundane tasks as to compared to as learning to fly a plane o be a pilot with a good income or.being one who can runes business and being a.productive member of society. .
Patrick has a bright future where as his distant cousins ( 4) will not ever have because they were born before the diet.
Patrick will also be able to Mary whom he wants and have kids after in life just as long as his mate doesn't carry the gene and if she does he will have a 50/50 chance of passing the gene.
Our son , thanks with the help of the CDRC,and his nutritional therapists, to whom we at eternally indebted to will have a productive happy life providing he stays on his diet.
Also there is a supplement in which all persons with PKU MUST have Phenex.his is an Amino Acid diet that is his protein supplement .
Why? Because Patrick can not have substantial amounts of protein .
It must be controlled through diet.
This means no meat, no eggs no fish no baked beans and anything we associate with as to having protein with is basically 99% of our normal diets.