PKU is not cheap.
Did you know that medical foods do not count For HUD as a deduction because the IRS does not count meals as a tax deduction unless there eaten in the hospital Even though the foods are despenced for a medical facility?
Did you know that if a child is diagnosed with PKU, they are automatically eligible for SSDI, providing families don't make over 1,000 and 2 people with a child with PKU who are on SSA is automatically disqualified for the program?
Did you know that Children with Classical PKU can not have chocolate? So fun times like Halloween means we ave to sort through the candy and remove al.toxic items to his brain?
No milk, no fish, no meat, no eggs , no chocolate unless we do a special recipe, no juice as it ha no nutritional value, no pasta Unless it is special ordered, no baked beans, Nothing with proteins.no cookies cakes, or anything unless we
make it.But this is the normal life of one who has PKU.
This is the normal life of one with PKU.
The newborn screening is a life saver.
If your wondering show one survives with PKU, they have a special Amino Acid formula called Phenex1 . It contains all the nutritional requirements for survival.It can not be baught at a store . And it has to be specially prescribed by a doctor in conjunction with a dietician.
This is how People with PKU live.
I am not a well spoken person. And hope that you can get sn Idea of what it takes to control Hyperphenalketenuria.