'Super Penelope' battles rare bone marrow disorder

Oregon girl battles rare disease

PORTLAND, Ore. -- A brave little girl from Aumsville is about to get a bone marrow transplant to fight a rare disease.

Penelope Butler, 2, has been in and out of the hospital her whole life with Diamond-Blackfan anemia. Only about 25-35 kids in the U.S. and Canada are born with the rare bone marrow disorder each year.

A complication of the disease has also made it difficult for Penelope’s body to create white blood cells, leading to more time with doctors.

Penelope has been getting treatment and blood transfusions at Doernbecher Children's Hospital. Next month, she'll go to Seattle Children’s Hospital for a bone marrow transplant.

Penelope’s mom gave her the nickname "Super Penelope," because of all she's been through.

“It’s one of the things we’ve been doing to try to encourage her,” said Jessica Butler. “We ask her, ‘You know what your super powers have?’ She's super strong, super brave and super fast,” said Butler.

Penelope's family set up a GoFundMe account to help pay for travel and missed work.


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