Amy Frohnmayer, daughter of former Oregon Attorney General and University of Oregon president Dave Frohnmayer, has died, her family announced Monday.

She lived 29 years with the rare bone marrow disease Fanconi anemia. The genetic disorder took her sister Katie in 1991 at age 12 and Kirsten in 1997 at age 24.

Father Dave Frohnmayer died of prostate cancer in March of 2015

Her brother Mark Frohnmayer posted this on Facebook.

"After a months-long valiant struggle, my dear sister Amy Winn succumbed to complications from leukemia early this morning. She was surrounded by her loving family when she passed and spent the last days of her life in the company of adoring friends and relatives.
A couple weeks ago, Amy and I filmed a last-ditch video plea to pharmaceutical executives for drugs we thought might save her life, and though her particularly vicious brand of AML took her before that effort could bear fruit, her words excerpted here so clearly summarized her boundless compassion for the beings with whom she shared this life, her unflagging determination, and the poetry of her soul.
I'll never forget you Amy; sister, teacher, and friend beyond compare."

She is survived by her mother Lynn, and brothers Mark and Jonathan, who are not affected by the disease.

The disease, and the plight of the daughters, caught the attention of the nation. People magazine, The Atlantic and “48 Hours” all reported on the family. It led to the creation of the national marrow registry and the Fanconi Anemia Research Fund. Go here to donate.

Before her death, brother Mark spent time with Amy, which he posted in Facebook.

Read the Eugene Register-Guard story of her passing.